Research Program Overview
The work on the measurement of HRQOL in children with epilepsy captures the experiential aspects of childhood epilepsy from the youths' and parents' perspective. These related measures have a conceptual basis that de facto provides a more specific definition of HRQOL in childhood epilepsy than any previous definitions. The model was generated by interviewing children and parents separately, using focus group format. Their perception of quality of life while living with epilepsy was derived from the analysis of their narratives. We now study outcome trajectories in this population and aim to identify epilepsy-related and other (child, family, community) factors that influence outcome.
- Multicentre longitudinal study over 28 months to identify outcome trajectories in childhood epilepsy.
Publications & Achievements
- Disease characteristics and psychosocial factors: Explaining the expression of quality of life in childhood epilepsy. Epilepsy Behav 2010
- Quality of life in childhood epilepsy: What is the level of agreement between youth and their parents? Epilepsy Behav 2009
- From eugenic euthanasia to habilitation of disabled children. Andreas Rett contribution. J Child Neurol 2009; 24: 115-127.
- Long-term prognosis in children with neonatal seizures: A population-based study. Neurology 2007
- Health-related quality of life in childhood epilepsy: Development of self-report and parent proxy-response measures. Epilepsia 2003
Phone: 905-521-2100 x73392
Title: Administrative Assistant
Title: Research Assistant