A registry of individuals with hereditary bleeding disorders, owned and operated by the Association of Hemophilia Clinic Directors of Canada (AHCDC). The CHR exists to promote research, educational and administrative initiatives of the AHCDC, which in turn welcomes the use of its data by all other organizations or individuals.
Data Summaries are available for viewing, or for downloading in “portable document file” format (PDF). Last Updated November 21, 2018.
Additional summaries can be made available on request to the director of the registry* provided that requests are consistent with the Operating Guidelines.