Clinical Study: System Integration and Its Influence on the Quality of Life of Children with Complex Needs
Thurston S, Paul L, Ye C, Loney P, Browne D, Browne G, Wong M, Thabane L, Rosenbaum P (2010)
International Journal of Pediatrics. V.2010, Article ID 570209, 1-12. doi:10.1155/2010/570209
This 2-year study explored the interactions between child and parent's psychosocial factors and team integration variables that may explain improvements in physical dimensions of the PEDS QL quality of life of children with complex needs. Parents were identified by the Children's Treatment Network and families were eligible if the child was aged 0-19 years, had physical limitations, resided in either Simcoe County or the Region of York, Ontario, and if there were multiple other family needs.
It was determined that a child's physical quality of life was affected by interacting factors including child's behaviour, parenting, and integrated care. Statistically significant interactions between team integration, processes of care, and child/parent variables highlight the complexity of the rehabilitation approach in real-life situations.
We concluded that rehabilitation providers working with children with complex needs and their families should also address child and parent problematic behaviours. When this was the case in high integrated teams, the child's physical quality of life improved after two years.
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