McMaster University

McMaster University

Faculty of
Health Sciences

New website launches to assist those with dementia and their families

Published: November 5, 2012
Carrie McAiney
Carrie McAiney, an assistant professor of psychiatry and behavioural neurosciences

McMaster University and University of Waterloo researchers have designed a website to help those navigating the journey of living with dementia.

The Living with Dementia website was designed to provide people newly diagnosed with dementia and their caregivers information and resources needed to live well with an illness causing dementia. This new research-based website, available in both English and French, was created in collaboration with people living with dementia, their family members and care providers.

"I would have been ecstatic to have walked away from my doctor’s office with this information; something that would allow me to be proactive and give me a sense of direction, instead of sitting in my car crying and feeling hopeless," said Brenda Hounam, who was diagnosed with dementia 10 years ago. "This website is a lifeline. It is a place to get safe, hopeful information."

The website covers a wide range of information with topics identified by those living with dementia, including answers to questions surrounding health care, how to continue living well with dementia, how to ensure they are receiving the right care and support to meet their needs, and how to begin the process of planning for the future.

Carrie McAiney, co-investigator, and associate professor in the Department of Psychiatry & Behavioural Neurosciences at McMaster University said this resource will be a valuable tool for professional health care providers and community organizations supporting those whose lives are touched by dementia.

"This project will help physicians, pharmacists, Alzheimer Societies and others find ways to integrate the Living With Dementia resource into their everyday practice so it can be shared with those living with dementia and their family members," she said.

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