Data Summaries

The summaries below include data on all individuals registered with Canadian hemophilia clinics. All individuals in Canada who use coagulation factor concentrates regularly, i.e. those most severely affected, are accounted for.

Patients with inhibitors (antibodies to factor VIII or IX), are classified according to the severity of hemophilia prior to the development of inhibitors. In some, the prior severity is not known, and these are designated as ‘unknown’ (severity).

The most recent comprehensive national audit was completed in May 2005. Between major audits, data is received voluntarily from individual clinics without a specific specified schedule, though ongoing maintenance of data is strongly encouraged (statistical archives are also available for years prior to 2013).

The data is compiled on the dates specified at the head of each report, and in the file name. Adobe Reader software is required to view the reports.


Individuals with factor VIII deficiency

  1. CHRVIII130517 (PDF May 27, 2013)
    'Hemophilia A' grouped by:

    1. Severity (Severe ≤1%, Moderate = 1-5%, Mild ≥ 5%); and

    2. Age, according to Statistics Canada age groups; and

    3. Gender (females can be registered if factor levels are ≤40%).

  2. CHRVIII130517b (PDF May 27, 2013)
    Same as 1, but age grouped according to pediatric (<18 years) & adult (≥18 years ).

Individuals with factor IX deficiency

  1. CHRIX130517 (PDF May 27, 2013)
    'Hemophilia B' grouped as for those with factor VIII deficiency.

  2. CHRIX130517b (PDF May 27, 2013)
    Same as 3, but age grouped according to pediatric (<18 years) & adult (≥18 years ).

Individuals with von Willebrand Factor Deficiency

  1. CHRVWD130517 (PDF May 27, 2013)
    Grouped by age and by type.

  2. CHRVWD130517b (PDF May 27, 2013)
    Same as 5, but age grouped according to pediatric (<18 years) & adult (≥18 years ).

Status of Individuals Infected with HIV

  1. CHRHIVstatus130517 (PDF May 27, 2013)
    Originally, HIV infection occuring during the early 1980's was documented in 657 individuals. This number has expanded to 671 through immigration.

Rare Inherited Coagulation Disorders

  1. CHRRareCoag130517 (PDF May 27, 2013)
    Rare Inherited Coagulation Disorders grouped by:

    1. Factor deficiency; and

    2. Severity (Severe ≤1%, Moderate = 1-5%, Mild ≥ 5%); and

    3. Age, according to Statistics Canada age groups; and

    4. Gender (females can be registered if factor levels are ≤40%).

  2. CHRRareCoag130517b (PDF May 27, 2013)
    Same as 8, but age grouped according to pediatric (<18 years) & adult (≥18 years ).

Rare Inherited Platelet Disorders:

  1. CHRRarePlt130517 (PDF May 27, 2013)
    Rare Inherited Platelet Disorders grouped by:

    1. Diagnosis

    2. Age, according to Statistics Canada age groups; and

    3. Gender

  2. CHRRarePlt120504b (PDF May 4, 2012)
    Same as 10, but age grouped according to pediatric (< 18 years) & adult (≥18 years).

Individuals with C1 Esterase Inhibitor Deficiency:

  1. CHRC1EI130517 (PDF May 27, 2013)
    Grouped by age and gender

Individuals With Congenital Hypogammaglobulinemia:

  1. CHRHypogamma130517 (PDF May 27, 2013)
    Grouped by age and gender


 

** Statistical archives are also available for:
2003, 2004, 2005, 2006, 2007, 2008, 2009, 2010, 2011, and 2012.


Visitors since
June 2003:


Dr. Irwin Walker, Director
walkeri@mcmaster.ca

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